Lupus Battle

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some mornings . . .
there are mountains to climb . . .
sometimes . . .
there are ditches to dig . . .
or jungles to cut through . . .
~0~
tired, exhausted . . .
no, it’s fatigue . . .
yes, that’s the word . . .
~0~
the challenge is . . .
crawling from bed . . .
washing my face . . .
task that must be done . . .
~0~
I just want to lay in the rays . . .
of lupus poisonous trigger . . .
close my eyes . . .
under an old tree . . .
feel the late summer breeze . . .
or maybe the remnants . . .
of those girls along the coast . . .
~0~
I want to bask in the laziness . . .
float upon calm seas . . .
but my life is a rugged terrain . . .
always a battle to conquer . . .
when the wolf with . . .
the butterfly nose . . .
lurks in the shadows . . .
~0~
I quietly hide trying to blend in . . .
like a chameleon . . .
best I can do is cry . . .
rainbow tears . . .
and wish for a . . .
pot of gold . . .
~0~
©Kimberly Wilhelmina Floria
9/3/15

It’s Lupus Awareness month and today is mother’s day. My mother died at the young age of 64 of a heart attack. Lupus a devastating autoimmune disease that attacks the organs went after her heart. My mother and I were just getting close when she died. We became real close after when I was diagnosed with lupus.  I had so many questions to ask her and there were so many questions the doctor asked. But I didn’t know.  When my mother died in 1993 many people didn’t know what lupus was.  I had the symptoms for years but the doctors didn’t recognize it and I went un-diagnosed until lupus too an aggressive hold on my and damaged my lungs.

 

Here are the most common symptoms of lupus from the Mayo Clinic. Click Here

 

The above poem is included in my book Pages of Pain which in honor of Mother’s Day and lupus Awareness Month is available free on kindle until Tuesday 2/11/16.  Please get a copy. Thanks for your support.

23 thoughts on “Lupus Battle

  1. Kim, sometimes I do not know how you do what you do.. Such a powerful poem.. I was pleased to read you and your Mum became closer towards the end..It puts life in perspective.. as your Mother was only two years senior to my self!
    Love your way Kim xx

  2. Kim, best wishes my friend. I love your descriptive reference to be wary of the wolf with the butterfly nose lurking in the shadows. Take care, Keith

    1. Thanks Keith. Lupus means wolf in Latin. The rash that most lupus warriors get on their face resembles the darkness around the wolf and it’s shaped like a butterfly.

      1. Thanks. I had a feeling it was a specific reference, so thanks for clarifying the additional meaning. I wish you did not have to know this first hand. Keith

  3. I’m pleased that you got close to your mother under these difficult circumstances as I got close to my father when he was extremely ill and passed. A friend of mine had lupus so I know a little of what is going on for you. I am sending you my out most healing.

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